Support Networks and Psychosocial Adaptation Among Caregivers of Children with Congenital Colorectal Malformations: A Qualitative Study

Abstract

Caring for children with congenital colorectal malformations places significant psychosocial demands on caregivers. Support networks are essential in shaping adaptation, yet little is known about their role in this context. This study explored how support networks enhance psychosocial adaptation among caregivers of children with congenital colorectal malformations, guided by the Interdependence Mode perspective. A descriptive phenomenological design was used. Caregivers were purposively recruited from the Paediatric unit of the Korle Bu Teaching Hospital in Ghana. Data were collected through semi-structured interviews and field notes, and analysed using thematic analysis. Three themes emerged: lack of support (family criticism and emotional isolation), social misunderstanding (stigma and blame), and sources of support (professional guidance, spiritual encouragement, and family assistance in daily care). Caregivers reported that these supports reduced distress, strengthened coping, and promoted resilience. The findings highlight the importance of both formal and informal support systems in improving caregivers’ psychosocial well-being and supporting positive child health outcomes.